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Now Spencer is a healthy boy who
will enter the seventh grade at Liberty School in the
fall. He loves running and soccer, playing the trumpet
and piano and attending Boy Scout events and church
camp. He barely remembers
being ill, but he has high praise for St. Jude, where he
continues to be part of the hospital's research.
"They always try to calm me
down," said Spencer, who still goes to Peoria for annual
checkups. "There's a person that checks you in, Darlene,
she's my best friend on the staff."
St. Jude, founded by the late
entertainer Danny Thomas in 1962, is the largest
childhood cancer research center in the United States in
terms of the number of patients enrolled in research
protocols and successfully treated.
On average, about 4,700 patients
are on active status at St. Jude at any given time. The
Midwest Affiliate opened in 1972, with about 70 patients
from central Illinois currently receiving treatment.
Since its inception, St. Jude
has developed protocols that have brought survival rates
for childhood cancers from less than 20 percent to about
70 percent overall.
Families never pay for
treatments that are not covered by insurance, and
families without insurance are never asked to pay. The
cost of lodging, meals and transportation for the
patient and one parent also is covered.
"There's nothing out of your
pocket," Nancy Waters said. "That takes the financial
worries away so you can focus totally on your child."
Spencer was treated at St. Jude
for bilateral Wilms tumor, which affects the kidneys.
Dr. Richard Noble of Quincy
Medical Group discovered a mass during a well baby check
and sent Spencer to St. Jude. He received chemotherapy
before having his right kidney removed and a piece of
his left kidney removed. He also received radiation
treatments.
"Every Tuesday we went to Peoria
and we flew down to Memphis once a month for about nine
months," Nancy Waters said. "From the time we went to
Peoria, they assigned us a social worker. At St. Jude,
they treat the whole family, and that helped us to
facilitate his good health."
Spencer says he doesn't remember
much about his initial treatment 10 years ago, but he
recalls one time when he had to get a computerized
tomography (CT) scan.
"I didn't want to be stuck with
a needle (for anesthesia), so they put the Lion King on
over the speakers and I laid quite still," he said,
adding that doctors and staff always make him feel
"unafraid."
After his initial treatment,
Spencer had to go back every three months for a year and
then every six months for a year. At age 5, he was
declared cancer free.
"We will continue to go back
every year until he is 18," Nancy Waters said.
"Every five years, he has an
echocardiogram because with one medicine he takes,
they're looking for the long-term effect on his heart."
When Spencer goes for his annual
checks, he meets a lot of other kids who are going
through treatment.
"I make friends every time I go
down there, even though I never see them again," he
said. "I hope they get better."
St. Jude's daily operating costs
are a little over $1 million, which are primarily
covered by public contributions.
That's why fundraisers such as
the Quincy to Peoria Run - which is part of the larger
Memphis to Peoria Run - are so important.
Spencer, now 14 years old and in
9th Grade, plans to participate in
the run, which begins at noon Aug. 3rd in the Bergner's
parking lot, and hopes to run with his brothers, Forrest,
20,
and Brian, 17.
"We're trying to make it a
family affair," Nancy Waters said. "I'm the
cheerleader."
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